The second day of the conference, Dr. Mao and I met with the PCORI video team, who powdered our faces, clipped on our microphones, and filmed a video interview about the CHOICE Study. The interview footage will be used on the PCORI website and YouTube Channel. Later that day, Dr. Mao and I presented the CHOICE Study in a breakout session entitled “Patient-Centered Approaches to the Management of Symptoms and Side Effects in Cancer Care”. Other research presented in our session included a mobile application developed at Harvard Medical School that helps improve patient adherence to oral chemotherapy regimens. This study also uses medicine bottle caps equipped with microchips that record the date and time each cap is opened, alerting oncologists to any medication adherence issues. Another study uses a web-based survey enabling patients to assess when to call their oncologists about troublesome symptoms. A short Q&A session followed the presentations, in which a researcher, a LiveStrong representative, and an insurance representative asked questions of Dr. Mao and the other presenters.
I’m grateful for the opportunity to participate in PCORI’s Annual Meeting and to learn more about the complex patient-centered research process. Soon, we will be able to see the implementation of projects like the CHOICE Study, and watch how PCORI achieves its goal of improving patients’ quality of life.
My Experience Attending the PCORI Annual Meeting
by Jodi MacLeod
Last week, I traveled to Washington D.C. to participate in the first PCORI Annual Meeting, where I helped Dr. Jun Mao present the Choice Study and its progress so far. PCORI (Patient Centered Outcomes Research Institute) is a nonprofit, nongovernmental agency that funds the CHOICE Study and other patient-centered research projects. Among the nearly 1,000 attendees were 180 patients, caregivers and patient advocates, 21 of whom were presenters at the conference. The meeting was entitled “Progress in Building a Patient-Centered Comparative Clinical Effectiveness Research Community”. Speakers detailed the need for collaboration between researchers, how to overcome challenges in disseminating results, and the work yet needed to ensure secure data sharing. One of PCORI’s goals is to shorten the time between when results become available and when patients benefit from the implementation of those results